O-Boy(s)!: The Crystal Ball

Wednesday, February 15, 2012

The Crystal Ball

On Monday Scotty's preschool celebrated Valentine's Day in royal fashion. All children were invited to attend the Royal Ball - Scotty thought it was called the Crystal Ball! All 30 children came in princess or knight costumes. The dance room was filled with castle backdrops. I was lucky enough to be a helper mom on my most favorite day of preschool.

This is Scotty and his best friend Isabelle. She is a full head taller than he is, and loves to play Mom to Scotty. He loves every minute of it.

We made roses out of Model Magic, ate royal snack, danced with stick horses, passed out Valentines, and each child was presented at the Royal Court - announcing Sir Scott! Then all the children were taught the dance for the ball. Together, apart; together, apart; one child spins; the other child spins; dance around the room holding hands; bow and say thank you and find another partner. Scotty danced his heart out. He was quite graceful, I must admit.

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What is FPIES?

I have 2 children that are recently healed from FPIES - Food Protein Induced Enterocolitis Syndrome. Scotty is 5 years old - and fought this disorder for about 3.5 hard years. Colin is a 20 month old baby - and had a quick recovery. He is recently cleared of all of his symptoms, calling him FPIES free!

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. Reactions to food are often delayed - a couple hours or even days.

Many children also experience a combination of discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistent hiccups, acid reflux, rashes, sleep disturbance, and agitation. Other atypical symptoms I see in my own children are persistent runny noses and ear infections. Sypmtoms can last a couple hours or even weeks after the initial ingestion of a trigger food.

FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it.

FPIES common trigger foods as listed in the literature include, but are certainly not limited to: Dairy, Soy, Rice, Oats, Barley, Green Beans, Sweet Potatoes, Squash, Chicken, Turkey, Corn, Eggs.

Safe foods for these children to eat are determined by food challenges either at home or the doctor's office, as directed by the child's physician.

Children diagnosed with FPIES are treated in part with a strict elimination diet - keeping all trigger foods 100% out of their bodies. It is hoped that this will give their gut time to "heal".

Read and learn more in Joy's collection of articles:
FPIES File Cabinet

Also see her great collection of articles at The FPIES Foundation:
Medical Resource Articles

Check out this new great website with tons of FPIES info:
International Association for Food Protein Enterocolitis