O-Boy(s)!: 3 Josephs

Saturday, December 4, 2010

3 Josephs

So maybe the story goes that there were 3 Wisemen...but this morning at our Ward breakfast, there were 3 Josephs. A few years ago I started a nativity play at the annual Ward Christmas Breakfast. Now it it the annual nativity play...and I don't have to be in charge of it anymore! All the children in the Ward come with a costume for whatever they would like to be. This year we had about 20 Mary's. There were even a couple sheep. The children basically stand on stage while the Christmas story is read and the adults in the audience sing carols at the appointed intervals.

This year my 3 boys all wanted to be Joseph with Colin as their baby Jesus. So we took Colin to church for the first time and wrapped him in swaddling clothes. It was adorable. Colin just happened to fall asleep 5 minutes before his stage debut. He slept peacefully in Michael's arms, center stage while the play was read.

Scotty lasted about half way thru, then came down from the stage saying he was "just like totally embarrassed".

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What is FPIES?

I have 2 children that are recently healed from FPIES - Food Protein Induced Enterocolitis Syndrome. Scotty is 5 years old - and fought this disorder for about 3.5 hard years. Colin is a 20 month old baby - and had a quick recovery. He is recently cleared of all of his symptoms, calling him FPIES free!

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. Reactions to food are often delayed - a couple hours or even days.

Many children also experience a combination of discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistent hiccups, acid reflux, rashes, sleep disturbance, and agitation. Other atypical symptoms I see in my own children are persistent runny noses and ear infections. Sypmtoms can last a couple hours or even weeks after the initial ingestion of a trigger food.

FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it.

FPIES common trigger foods as listed in the literature include, but are certainly not limited to: Dairy, Soy, Rice, Oats, Barley, Green Beans, Sweet Potatoes, Squash, Chicken, Turkey, Corn, Eggs.

Safe foods for these children to eat are determined by food challenges either at home or the doctor's office, as directed by the child's physician.

Children diagnosed with FPIES are treated in part with a strict elimination diet - keeping all trigger foods 100% out of their bodies. It is hoped that this will give their gut time to "heal".

Read and learn more in Joy's collection of articles:
FPIES File Cabinet

Also see her great collection of articles at The FPIES Foundation:
Medical Resource Articles

Check out this new great website with tons of FPIES info:
International Association for Food Protein Enterocolitis