O-Boy(s)!: Art Exhibit

Sunday, February 27, 2011

Art Exhibit

Last Tuesday the big boys were out of school for a teacher work day. Amy came to babysit the two littles, and we headed down to Provo to go to the BYU art museum to see a special art exhibit (as it was advised that Scotty was too young for the experience). The museum has a special exhibit of 5 Carl Bloch paintings of Jesus Christ, visiting from Lutheran cathedrals in Denmark. It took years to negotiate this arrangement, and it is a wonderful occasion. The night before I was telling Michael the plan. He said to me, "Well since I have the Holy Ghost now, this will be great. It will be a boost".

And we are able to report that it was a BOOST for all 3 of us! This was Michael's favorite painting of the 5. He says that it was just because he liked the way it made him feel. Jacob loved the other one above because he liked what the scholar taught us on our iPad tour - that Christ not only bids us to have the faith of a child, but that he wants all people on earth to be kind to little children. Jacob liked this message. We spent an hour admiring, talking about and listening to our tour of these 5 glorious paintings. What a treat!

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What is FPIES?

I have 2 children that are recently healed from FPIES - Food Protein Induced Enterocolitis Syndrome. Scotty is 5 years old - and fought this disorder for about 3.5 hard years. Colin is a 20 month old baby - and had a quick recovery. He is recently cleared of all of his symptoms, calling him FPIES free!

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. Reactions to food are often delayed - a couple hours or even days.

Many children also experience a combination of discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistent hiccups, acid reflux, rashes, sleep disturbance, and agitation. Other atypical symptoms I see in my own children are persistent runny noses and ear infections. Sypmtoms can last a couple hours or even weeks after the initial ingestion of a trigger food.

FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it.

FPIES common trigger foods as listed in the literature include, but are certainly not limited to: Dairy, Soy, Rice, Oats, Barley, Green Beans, Sweet Potatoes, Squash, Chicken, Turkey, Corn, Eggs.

Safe foods for these children to eat are determined by food challenges either at home or the doctor's office, as directed by the child's physician.

Children diagnosed with FPIES are treated in part with a strict elimination diet - keeping all trigger foods 100% out of their bodies. It is hoped that this will give their gut time to "heal".

Read and learn more in Joy's collection of articles:
FPIES File Cabinet

Also see her great collection of articles at The FPIES Foundation:
Medical Resource Articles

Check out this new great website with tons of FPIES info:
International Association for Food Protein Enterocolitis