O-Boy(s)!: Colin Says

Sunday, January 27, 2013

Colin Says

This little bug is fun to hang out with during my days. He likes to know what we are going to do each day. Each morning after bath time he asks me, "So, what today? Maybe the store?" Currently on the schedule we have mopping day [Monday], gymnastics show day [Tuesday], library day [Wednesday] and church day [Sunday].

Colin says really funny things these days. I love this phase of toddlerhood and will miss it all too soon.

The other day he asked for a piece of bread for a snack. I had a loaf of Great Harvest 9 Grain bread and handed him a piece. He squished up his nose and handed it back to me saying, "I don't wike it muffin bread. I wike WHITE BREAD!!!"

Another day last week, Scotty had a snack that he wanted as well. In a grown-up voice he turns to me and asks: "May I please have my own Mom?" in a complete sentence with all the correct grammar. Please stay little.

This morning Colin was counting in Spanish at the kitchen counter and leans down to have a drink of his protein shake. Accidentally he spills it, and exclaims: "Oh my gosh, CRAP!!" yes, he is #4.

We are particularly in love with his new gesture. When someone asks him a question that he doesn't know the answer to [or doesn't want to answer], he does this little, fast shoulder shrug. It is completely adorable....and so we ask him questions all day.

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What is FPIES?

I have 2 children that are recently healed from FPIES - Food Protein Induced Enterocolitis Syndrome. Scotty is 5 years old - and fought this disorder for about 3.5 hard years. Colin is a 20 month old baby - and had a quick recovery. He is recently cleared of all of his symptoms, calling him FPIES free!

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. Reactions to food are often delayed - a couple hours or even days.

Many children also experience a combination of discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistent hiccups, acid reflux, rashes, sleep disturbance, and agitation. Other atypical symptoms I see in my own children are persistent runny noses and ear infections. Sypmtoms can last a couple hours or even weeks after the initial ingestion of a trigger food.

FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it.

FPIES common trigger foods as listed in the literature include, but are certainly not limited to: Dairy, Soy, Rice, Oats, Barley, Green Beans, Sweet Potatoes, Squash, Chicken, Turkey, Corn, Eggs.

Safe foods for these children to eat are determined by food challenges either at home or the doctor's office, as directed by the child's physician.

Children diagnosed with FPIES are treated in part with a strict elimination diet - keeping all trigger foods 100% out of their bodies. It is hoped that this will give their gut time to "heal".

Read and learn more in Joy's collection of articles:
FPIES File Cabinet

Also see her great collection of articles at The FPIES Foundation:
Medical Resource Articles

Check out this new great website with tons of FPIES info:
International Association for Food Protein Enterocolitis