O-Boy(s)!: 6.5 Months Old

Tuesday, May 10, 2011

6.5 Months Old

Colin is 6.5 months old! This cute boy loves his daddy. When Peter gets home from work, Colin does everything in his baby power to say "PICK ME UP!" - excited smiles, anxious whimpers, flapping arms, kicking legs, banging toys, screams and screeching. When Peter leaves for work out the back door each morning, he cries.

Sleeping is challenging these days. It is nearly impossible to sleep-train a baby with FPIES. Often his tummy is uncomfortable, or poop wakes him up. Gross. And so we take turns- Peter wakes up with him most nights, and me most very early mornings. We are tired. Good thing he is cute.

We tried apples last week. No puking! Yay. The doctor wanted me to start with meats, but I knew to start him on apples. And apples worked. I like this system that has been arranged for knowing what to feed these 2 boys of mine. I can depend on it, and that is comforting.

No comments:

Post a Comment

What is FPIES?

I have 2 children that are recently healed from FPIES - Food Protein Induced Enterocolitis Syndrome. Scotty is 5 years old - and fought this disorder for about 3.5 hard years. Colin is a 20 month old baby - and had a quick recovery. He is recently cleared of all of his symptoms, calling him FPIES free!

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. Reactions to food are often delayed - a couple hours or even days.

Many children also experience a combination of discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistent hiccups, acid reflux, rashes, sleep disturbance, and agitation. Other atypical symptoms I see in my own children are persistent runny noses and ear infections. Sypmtoms can last a couple hours or even weeks after the initial ingestion of a trigger food.

FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it.

FPIES common trigger foods as listed in the literature include, but are certainly not limited to: Dairy, Soy, Rice, Oats, Barley, Green Beans, Sweet Potatoes, Squash, Chicken, Turkey, Corn, Eggs.

Safe foods for these children to eat are determined by food challenges either at home or the doctor's office, as directed by the child's physician.

Children diagnosed with FPIES are treated in part with a strict elimination diet - keeping all trigger foods 100% out of their bodies. It is hoped that this will give their gut time to "heal".

Read and learn more in Joy's collection of articles:
FPIES File Cabinet

Also see her great collection of articles at The FPIES Foundation:
Medical Resource Articles

Check out this new great website with tons of FPIES info:
International Association for Food Protein Enterocolitis