O-Boy(s)!: Conference Muffins

Sunday, October 3, 2010

Conference Muffins

I woke up early this morning to make Conference Muffins, trying to beat the inevitable puking that was soon to come. When Peter and I were first married, he asked if I was going to make Conference Muffins for General Conference. What were Conference Muffins? ...apparently the muffins that I made every single General Conference without even realizing it (...the same ones my mom baked of course)! The name stuck. They are my Grandma Renae's recipe for cinnamon muffins - they taste like a doughnut, but baked like a muffin. Now we all look forward to this breakfast treat twice yearly.

Jacob especially starts talking about them as we get closer to Conference weekend. It is fun to have this tradition on a weekend that feels as exciting as a holiday. Peter and I love General Conference! We hope our love will be contagious to our children! Right now it is a bit challenging to help all little bodies sit and watch so that it is actually enjoyable to all. We will get there someday...

Three happy children working quietly on their Conference coloring packets....photos can be deceiving!! This lovely sight lasted about 20 minutes. Ha! The afternoon session was much more successful when they realized from the morning's experience that we were actually serious about sitting and watching QUIETLY!

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What is FPIES?

I have 2 children that are recently healed from FPIES - Food Protein Induced Enterocolitis Syndrome. Scotty is 5 years old - and fought this disorder for about 3.5 hard years. Colin is a 20 month old baby - and had a quick recovery. He is recently cleared of all of his symptoms, calling him FPIES free!

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. Reactions to food are often delayed - a couple hours or even days.

Many children also experience a combination of discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistent hiccups, acid reflux, rashes, sleep disturbance, and agitation. Other atypical symptoms I see in my own children are persistent runny noses and ear infections. Sypmtoms can last a couple hours or even weeks after the initial ingestion of a trigger food.

FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it.

FPIES common trigger foods as listed in the literature include, but are certainly not limited to: Dairy, Soy, Rice, Oats, Barley, Green Beans, Sweet Potatoes, Squash, Chicken, Turkey, Corn, Eggs.

Safe foods for these children to eat are determined by food challenges either at home or the doctor's office, as directed by the child's physician.

Children diagnosed with FPIES are treated in part with a strict elimination diet - keeping all trigger foods 100% out of their bodies. It is hoped that this will give their gut time to "heal".

Read and learn more in Joy's collection of articles:
FPIES File Cabinet

Also see her great collection of articles at The FPIES Foundation:
Medical Resource Articles

Check out this new great website with tons of FPIES info:
International Association for Food Protein Enterocolitis